Living With a Long-Term Condition: Share Your Experience

At Ellia, we help people stay independent at home with friendly, flexible support. As we build a new service for people living with long-term conditions, we want to listen first. Your experience matters and it will help us design something genuinely useful.

What’s involved?

  • A short 10-minute conversation by phone or video

  • A few simple questions about your day to day experience

  • A £10 Amazon voucher as a thank you for your time

Click here to register to take part
Click here to find out more about the study

Register to Take Part.

Fill out some info and we will be in touch shortly!

About the study.

Why are we doing this?

Many people living with chronic or long-term conditions are managing a lot on their own. We’re developing a new kind of support. To get it right, we need to hear from the people who live with these conditions every day.

Who can take part?

Anyone in the UK living with a long-term condition, such as:

  • autoimmune conditions

  • cancer (past or present)

  • neurological conditions

  • chronic pain

  • long-term respiratory, cardiac, digestive or endocrine conditions

You don’t need to be an Ellia client to take part. You don’t need to send us any medical documents.
You’ll simply show a diagnosis letter or clinic summary during the call. We will not store this information.

How we’ll use your information

We’ll use what you share to help us understand:

  • what everyday life is like with a long-term condition

  • what practical or emotional support would be most helpful

  • how Ellia could design a service that fits around real needs

We will not ask you to upload medical documents and we won’t store copies of anything you show us on screen.

Your personal details will be kept secure, and your responses will be anonymised as soon as possible.

You can read more in our Participant Information Sheet and Privacy Notice.